Apr 2, 2026
Digital tools expand patient engagement in Parkinson’s disease
Prof. Jens Volkmann, Chair of Neurology at University of Würzburg, spokesperson of the CRC SFB/TRR 295 “ReTune” and Chair of the Parkinson Foundation, bridges two central missions: advancing biomedical research and translating scientific knowledge into direct patient benefit.
On World Parkinson’s Day 2026, the Parkinson Foundation presented new digital initiatives to improve access to reliable information and strengthen patient engagement.
A central element is the AI-based chatbot “jAImes”, built on the OpenWebUI platform and linked to a curated knowledge database of verified scientific content, including studies and clinical guidelines. Unlike general AI assistants, the database is continuously updated by the foundation to ensure exclusively evidence-based content. “We are building a connected digital information ecosystem that supports people with Parkinson’s and their families with scientifically grounded guidance — from the moment of diagnosis to everyday questions,” says Volkmann. “jAImes offers direct support around the clock, without waiting times and anonymously.”
On April 15, the foundation hosted a free online information day featuring expert talks, live Q&A sessions, and patient perspectives — enabling broad participation regardless of mobility or location.
The foundation funds six research projects through its “Leuchtturm” consortium, jointly with the German Society for Parkinson’s Disease and Movement Disorders, targeting early diagnosis and novel therapeutic strategies. “Our vision is to fundamentally improve Parkinson’s treatment and enable people to live more self-determined lives,” Volkmann emphasizes.
Further information: www.parkinson-gesellschaft.de
© Picture: Parkinson Stiftung
